Expressing support for the designation of May 17, 2024, as "DIPG Pediatric Brain Cancer Awareness Day" to raise awareness of, and encourage research on, diffuse intrinsic pontine glioma tumors and pediatric cancers in general.
Health
senate
Introduced on May 15, 2024 by Marco Rubio
Cosponsors
Legislation Details
- Supports the designation of May 17, 2024, as “DIPG Pediatric Brain Cancer Awareness Day.”
- Acknowledges that diffuse intrinsic pontine glioma (DIPG) tumors affect 200 to 300 children in the U.S. annually.
- Recognizes brain tumors as the leading cause of cancer-related death among children, with DIPG tumors being the leading cause of pediatric brain cancer deaths.
- Notes the median survival time post-diagnosis of a DIPG tumor is approximately 11 months, with a 5-year survival rate of about 2%.
- Highlights that the average age of children diagnosed with DIPG is between 5 and 10 years, significantly reducing their life expectancy compared to the national average.
- Acknowledges that there has been no significant improvement in the prognosis for children diagnosed with DIPG tumors in the past 50 years.
- Supports efforts to better understand, develop effective treatments for, and provide comprehensive care for children with DIPG tumors and their families.
- Encourages the public to become more informed about DIPG tumors, pediatric brain cancer in general, and the challenges and advancements in pediatric cancer research.
Last updated 10/13/2024