2025 third_quarter Filing

Supported the ABC Act

Supported the Credit for Caring Act

Opposed the One Big Beautiful Bill Act Supported the Accelerating Kids' Access to Care Act Supported a joint request for Fiscal Year 2026 Appropriations for ALS Programs Supported Pharmacy Benefit Manager (PBM) Reform Patient Priorities Expressed opposition to effort that caps indirect costs in NIH grants to 15% Supported efforts to add FSHD to the Peer Reviewed Medical Research Program Supported the reauthorization of the Rare Pediatric Disease PRV Program as part of the Gives Kids a Chance Act Continued efforts to reauthorize the ACT for ALS Supported the reintroduction of the MVP Act Supported the reintroduction of the Patient Access Act Supported the introduction of legislation that would better facilitate wheelchair repair Supported the ABC Act Supported legislation that increases access to home and community-based services Supported the HEARD Act Joined Coalition Comments on Repealing H.R. 1 Health Provisions or Medicaid Provisions and Extending APTCs Joined Coalition Comments Urging Pharmacy Benefit Manager (PBM) Reforms Joined Coalition Comments in Opposition to CMS/OMB Proposal to Include Ostomy, Tracheostomy, and Urological Supplies in Medicare Competitive Bidding Submitted joint MDA and PPMD Comments for Consideration of Adding Duchenne Muscular Dystrophy to the Recommended Uniform Screening Panel Submitted MDA Comments on Energy and Commerce Subcommittee on Health Markup of the Newborn Screening Saves Lives Reauthorization Act (H.R.4709) Joined Coalition Comments to House Appropriations Leaders Calling for Robust Federal Funding for Medical Research in FY26 Budget Submitted MDA Comments to CMS Administrator Oz re: CY2026 Home Health Prospective Payment System Proposed Rule: Medicare Competitive Bidding of Ostomy and Urological Supplies Joined Coalition Comments to CMS Administrator Oz re: CY2026 Home Health Prospective Payment System Proposed Rule: Medicare Competitive Bidding of Ostomy and Urological Supplies Joined Coalition Comments to CMS Administrator Oz re: CY 2026 Home Health Prospective Payment System Proposed Rule: Competitive Bidding of Off-the-Shelf Orthotics, Accreditation Organizations, and Prior Authorization Joined Coalition Comments to CMS Administrator Oz re: Concerns Regarding the WISeR Model and Access to Medically Necessary Rehabilitation Care Joined Coalition Comments to CMS Administrator Oz on ITEM Coalition Support for a More Robust Pathway for Medicare Coverage of Breakthrough Technologies Submitted MDA Comments to HHS Sec. Kennedy on Personal Responsibility and Work Opportunity Reconciliation Act of 1996; Interpretation of Federal Public Benefit Joined Coalition Comments to Congressional Leadership on Reauthorizing the Enhanced Advance Premium Tax Credit Joined Coalition Comments to HHS on Ensuring Lawful Regulation and Unleashing Innovation to Make America Healthy Again Request for Information Joined Coalition Comments to Centers for Medicare and Medicaid Services (CMS) on Contract Year (CY) 2026 Medicare Prescription Payment Plan Program Joined Coalition Comments in Support of the Improving Seniors Timely Access to Care Act, S.1816/H.R. 3514