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The bill increases federal attention, coordination, and transparency around epilepsy—potentially improving diagnosis, care, and supports—while requiring new federal spending and incurring administrative and privacy burdens without guaranteeing immediate services.
People with epilepsy will get more coordinated research, services, and care planning through a national plan and advisory council, increasing federal attention to the condition.
People with epilepsy will have improved early diagnosis and access to expert care (which can reduce seizure-related harms and deaths such as SUDEP).
Caregivers and families may face reduced financial burdens and better care coordination because the plan includes recommendations aimed at economic supports and family-focused services.
Taxpayers and the federal budget will likely face increased spending because implementing the national plan and ongoing activities through 2035 will require federal resources.
Federal agencies, hospitals, and providers will incur additional administrative workload from mandated reporting, coordination, and plan implementation requirements.
Hospitals, state agencies, and patients could face privacy and administrative concerns due to data-sharing requirements tied to the national plan.
Creates a federally led National Plan for Epilepsy and an Advisory Council on Epilepsy Research, Care, and Services to coordinate research, clinical care, services, data sharing, and public reporting. The Secretary of Health and Human Services must develop, maintain, and periodically update an integrated national plan, perform a comprehensive assessment within two years and annually thereafter, require federal agencies to share epilepsy data, and submit annual reports to Congress; the new authorities expire on December 31, 2035.
Introduced February 11, 2025 by Jim Costa · Last progress February 11, 2025