Last progress September 4, 2025 (3 months ago)
Introduced on September 4, 2025 by Charles Ernest Grassley
Read twice and referred to the Committee on Finance.
This plan expands the Open Payments rules to shine a light on money going from drug and device companies to patient advocacy groups. Starting in 2027, companies must report these payments each year so the public can see the name of the group and how much money it received, including money routed through third parties at the company’s direction . It also updates the law so patient advocacy organizations are included alongside other covered recipients in the reporting system .
The goal is to make it easier for patients and families to understand who funds the groups they turn to for information and support. “Covered payments” include both direct and indirect transfers of value to these groups. A “patient advocacy organization” is a tax‑exempt nonprofit that educates, advocates, or supports patients and caregivers, focuses on a medical condition, or helps vulnerable people affected by medical conditions and their families .