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May 21, 2026
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Download official Senate Record PDFReturn to issue contextMONTH OF MAY 2026 AS “PROGRESSIVE SUPRANUCLEAR PALSY AND CORTICOBASAL
DEGENERATION AWARENESS MONTH”
Mr. BLUMENTHAL submitted the following resolution; which was referred to the Committee on Health, Education, Labor, and Pensions:
S. Res. 752
Whereas progressive supranuclear palsy, often referred to
as “PSP”, and corticobasal degeneration, often referred to
as “CBD”, are rare, adult onset, rapidly progressing
neurodegenerative disorders that affect multiple areas of the
brain and cause complex symptoms and care needs;
Whereas, although some symptoms may appear similar to those
of other neurological diagnoses like Parkinson's disease and
frontotemporal dementia, progressive supranuclear palsy and
corticobasal degeneration are distinct diseases with their
own unique trajectories and care needs;
Whereas, while estimates vary and the conditions are
frequently misdiagnosed, approximately 30,000 Americans are
living with progressive supranuclear palsy and 2,000
Americans are living with corticobasal degeneration;
Whereas delays in the accurate diagnosis of progressive
supranuclear palsy and corticobasal degeneration and access
to neurology professionals specialized in these diseases are
common and cause confusion, anxiety, and frustration among
patients;
Whereas progressive supranuclear palsy and corticobasal
degeneration can cause significant difficulty with movement,
balance, speech, swallowing, cognition, vision, mood, and a
variety of other complex symptoms;
Whereas progressive supranuclear palsy and corticobasal
degeneration are aggressive in their progression, with most
individuals becoming dependent on care in 3 to 4 years and
having an overall life expectancy of 7 to 8 years from
symptom onset;
Whereas there are currently no disease-modifying treatments
for progressive supranuclear palsy or corticobasal
degeneration;
Whereas more research is needed to understand the roles of
environmental factors and genetics in why people develop
progressive supranuclear palsy and corticobasal degeneration;
Whereas there are countless family caregivers, friends, and
loved ones whose lives are greatly affected by progressive
supranuclear palsy and corticobasal degeneration;
Whereas additional research, support services, and
education are needed to maintain quality of life for those
affected by the disease, to develop better treatments and
prevention of complications, and to find cures for
progressive supranuclear palsy and corticobasal degeneration;
and
Whereas the designation of the month of May 2026 as
“Progressive Supranuclear Palsy and Corticobasal
Degeneration Awareness Month” will benefit individuals
diagnosed with the diseases, families, healthcare
professionals, and communities across the country and will
further bolster awareness of the diseases: Now, therefore, be
it
Resolved, That the Senate—
(1) supports the designation of May 2026 as “Progressive
Supranuclear Palsy and Corticobasal Degeneration Awareness
Month”;
(2) supports the goals and ideals of Progressive
Supranuclear Palsy and Corticobasal Degeneration Awareness
Month;
(3) supports research on diagnosis, prevention, treatments,
and cures for progressive supranuclear palsy and corticobasal
degeneration;
(4) recognizes the strength and resilience of the
communities affected by progressive supranuclear palsy and
corticobasal degeneration; and
(5) commends the individuals, families, volunteers,
healthcare professionals, researchers, and organizations
across the country who are working to improve the lives of
people living with progressive supranuclear palsy and
corticobasal degeneration.