Expressing support for the designation of September 2024 as "Sickle Cell Disease Awareness Month" in order to educate communities across the United States about sickle cell disease and the need for research, early detection methods, effective treatments, and preventative care programs with respect to complications from sickle cell disease and conditions related to sickle cell disease.

Health

senate

Legislation Details

Supports the designation of September 2024 as “Sickle Cell Disease Awareness Month.”
Aims to educate communities about sickle cell disease (SCD) and its implications.
Highlights the need for research, early detection methods, effective treatments, and preventative care programs related to SCD.
Recognizes SCD as a significant inherited blood disorder affecting approximately 100,000 individuals in the U.S.
Notes that around 1,000 babies are born with SCD each year in the U.S., with higher prevalence in Black or African American and Hispanic-American infants.
States that over 3 million individuals in the U.S. carry the sickle cell trait, with a notable chance of passing the disease to offspring.
Acknowledges the severe limitations on life expectancy for individuals with SCD, with potential reductions of over 20 years.
Points out that SCD can lead to serious medical complications, including strokes and severe pain episodes.
Mentions the need for improved screening and medication usage among children with sickle cell anemia.
References a 2020 strategic plan by the National Academies of Science, Engineering, and Medicine emphasizing the need for innovative therapies and improved access to treatments.
Encourages public programs and activities during Sickle Cell Disease Awareness Month to raise awareness about the sickle cell trait and available patient services.