Expressing the need for enhanced public awareness of Huntington's Disease and support for the designation of a "National Huntington's Disease Awareness Month".

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Introduced on May 23, 2024 by William J. Pascrell

Legislation Details

Expresses the need for increased public awareness of Huntington’s Disease.
Supports the designation of a “National Huntington’s Disease Awareness Month.”
Highlights Huntington’s Disease as a fatal genetic disorder causing the breakdown of nerve cells in the brain.
Notes that Huntington’s Disease deteriorates physical and mental abilities typically during prime working years without a cure.
States Huntington’s Disease is hereditary, with a 50/50 chance of being passed from parent to child.
Mentions approximately 41,000 symptomatic Americans and over 200,000 at risk of inheriting the disease.
Describes the symptoms of Huntington’s Disease as including progressive motor dysfunction, behavioral disturbance, and cognitive decline.
Points out that symptoms usually begin in adulthood, between ages 30 to 50, but can also occur in children and young adults (juvenile Huntington’s Disease).
Emphasizes the vast lack of public awareness and the importance of understanding this to improve public health campaigns.
Recognizes May as “National Huntington’s Disease Awareness Month” as designated by the Huntington’s Disease Society of America.
Encourages the President to issue a proclamation designating a National Huntington’s Disease Awareness Month.

Last updated 8/23/2024