Designates May 2025 as ALS Awareness Month and affirms the Senate’s support for people living with amyotrophic lateral sclerosis (ALS). The resolution notes key facts about ALS (no cure, typical life expectancy, causes of death, caregiver burdens) and expresses support for timely access to treatments and services, research into causes and risk factors, measures that help patients remain independent, and recognition of caregivers, researchers, volunteers, and organizations working on ALS.
Amyotrophic lateral sclerosis (referred to in the preamble as ALS) is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord.
The life expectancy for an individual with ALS is between 2 and 5 years after the date on which the individual receives an ALS diagnosis.
ALS occurs throughout the world with no racial, ethnic, gender, or socioeconomic boundaries.
ALS may affect any individual in any location.
The cause of ALS is unknown in up to 90 percent of cases.
Primary affected groups are people living with ALS and their families and caregivers: the resolution recognizes their needs and the burdens they face and expresses legislative support for access to care, research, and supportive services. Researchers, clinicians, advocacy organizations, and volunteers are acknowledged and may use the designation as a platform for outreach, fundraising, awareness campaigns, and policy advocacy. Federal, state, and local agencies are not required to act by this resolution, but they may respond by promoting awareness, coordinating events, or highlighting available services. Overall impact is symbolic and awareness-focused rather than regulatory or financial; it may help mobilize attention and private or public initiatives but carries no direct funding or legal obligations.
Last progress June 5, 2025 (8 months ago)
Introduced on June 5, 2025 by Lisa Murkowski
Passed/agreed to in Senate: Submitted in the Senate, considered, and agreed to without amendment and with a preamble by Unanimous Consent.