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Creates a comprehensive federal framework to strengthen privacy, security, de‑identification, consent, and breach rules for health-related data. It directs HHS (working with the FTC) to write enforceable rules that build on HIPAA/HITECH, requires clearer notice and consent when data leaves HIPAA protections (including prohibiting sales without consent and offering opt-outs for digital wellness data), sets national standards for when data is “de‑identified,” commissions a National Academies study on paying people for identifiable health data, and issues guidance for AI uses of health data.
Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Introduced November 4, 2025 by Bill Cassidy · Last progress 3 months ago