Sponsors (13)
This bill directs modest, targeted federal investment to study and prevent environment-linked neurodegenerative disease—improving research, surveillance, training, and public access to findings—while creating taxpayer costs, possible opportunity costs for other research, administrative burdens, and meaningful data-privacy risks for participants.
Patients with neurodegenerative conditions and researchers will receive sustained federal research funding ($50M/year FY2027–FY2031; $250M total) to study environmental causes and prevention, enabling more studies and potential advances in prevention and treatment.
Hospitals, state governments, and public health systems will benefit from creation of coordinated national data systems and research centers to improve surveillance and evidence about environmental exposures (air, water, PFAS, metals), strengthening the evidence base for prevention policy.
The general public and patients will gain better access to findings and prevention information through a public clearinghouse, website postings, and mandated biennial reports, increasing transparency and usable guidance on environmental risk reduction.
Participants in the nationwide patient data system (patients with neurodegenerative conditions and people with disabilities) face heightened privacy and data-security risks if safeguards are not explicitly strong and enforced.
Taxpayers bear new discretionary spending of roughly $250 million over five years, which could increase deficits or require budget offsets that affect other programs or taxes.
NIH/HHS research priorities and funding could shift toward environmental neurodegenerative research, potentially reducing funds or attention for other research areas and investigators.
Based on analysis of 4 sections of legislative text.
Requires HHS to create and fund research, training, and public-information activities on environmental risk factors for neurodegenerative disease and to fund competitive research centers with $50M/year FY2027–2031.
Introduced March 3, 2026 by Suhas Subramanyam · Last progress March 3, 2026
Creates a new HHS program to research and share information about environmental risk factors (including toxicant exposures) for neurodegenerative diseases. The program will fund university- and institution-based competitive research centers, support training and public health information, coordinate across HHS, and report its findings to Congress and the public. Authorizes $50 million per year for fiscal years 2027–2031 to support research, training, and dissemination activities, with center grants lasting up to five years and eligible for renewal based on peer review.