Sponsors (13)
The bill directs modest federal investment to build research, data systems, training, and public reporting on environmental drivers of neurodegenerative disease — potentially improving prevention and care — while creating privacy risks, modest budgetary costs, and possible shifts in research priorities and administrative burden.
Patients with neurodegenerative conditions and researchers will get sustained federal research funding ($50M/year for FY2027–FY2031) to study environmental causes and prevention, enabling more studies and potential progress on causes and interventions.
Hospitals, state public-health systems, and researchers will gain coordinated national data systems and research centers to improve surveillance and evidence on environmental exposures (air, water, PFAS, metals), strengthening prevention and policy-making.
The general public and patients will have improved access to findings via a public clearinghouse, website postings, and mandated biennial reports, increasing transparency and availability of prevention information.
Participants in the nationwide patient data system (people with or at risk for neurodegenerative diseases) could face increased privacy and data-security risks if safeguards are not clearly defined and enforced.
Taxpayers will fund new discretionary spending of about $250 million over five years, which could add to deficits or require offsets and competes with other budget priorities.
NIH/HHS research and center funding priorities may shift toward environmental neurodegenerative research, potentially reducing resources available for other research areas and affecting scientists and health systems focused elsewhere.
Based on analysis of 4 sections of legislative text.
Directs HHS to establish a research, training, and information program on environmental risk factors for neurodegenerative disease and funds competitive centers at $50M/year (FY2027–FY2031).
Creates a new HHS program to study how environmental risk factors and toxicant exposures contribute to neurodegenerative diseases and to share prevention and management information. It funds competitive collaborative research centers, requires HHS coordination and biennial public reporting to Congress, and authorizes $50 million per year for FY2027–FY2031 to support research, training, and information dissemination.
Official title: To amend the Public Health Service Act to require the Secretary of Health and Human Services to establish a program for the conduct and support of research, training, and health information dissemination with respect to environmental risk factors of neurodegenerative diseases, and for other purposes.
Introduced March 3, 2026 by Suhas Subramanyam · Last progress March 3, 2026