Expressing support for the designation of April 5, 2025, as "Barth Syndrome Awareness Day".

This resolution shows support for making April 5, 2025 “Barth Syndrome Awareness Day.” It’s a statement from the House to bring attention to Barth syndrome, a rare genetic condition. It does not change any laws or create new programs; it simply encourages public awareness on that day .

Key points:

• What changes: A recognition day to raise awareness about Barth syndrome .
• Who is affected: People with Barth syndrome, their families, caregivers, and the general public who may learn more about the condition .
• When: April 5, 2025 .