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Designates a day as “FSGS Awareness Day” to raise public awareness of focal segmental glomerulosclerosis (FSGS), a rare kidney disease that often leads to kidney failure and imposes high medical costs. The resolution praises patient advocates, community fundraisers, researchers, clinicians, families, and others working to improve diagnosis, care, research, and the search for treatments and a cure.
Approximately 1 in 7 American adults have chronic kidney disease, and glomerulonephritis is the third leading cause of chronic kidney disease; rare kidney diseases such as FSGS often cause glomerulonephritis.
Focal segmental glomerulosclerosis (FSGS) refers to scarring in the kidneys that often leads to a difficult course and can result in kidney failure, dialysis, transplant, and cycles of remission and relapse.
Fifty percent of patients with FSGS require dialysis or a kidney transplant within 5–10 years of diagnosis.
FSGS is severe because it often progresses rapidly to kidney failure, and primary FSGS can recur in transplanted kidneys up to 50 percent of the time.
FSGS recurrence can occur quickly after transplant (sometimes hours to days) and may raise the recurrence risk in future grafts to 80–100 percent.
Who is affected and how:
Net effect: The resolution is symbolic. It aims to focus attention and support for awareness, education, and research without creating legal, regulatory, or funding changes. Any downstream practical effects (increased screening, more research participation, or additional private fundraising) would be indirect and voluntary.
Last progress June 12, 2025 (8 months ago)
Introduced on June 12, 2025 by Gus Bilirakis
Referred to the House Committee on Energy and Commerce.