Sponsors (6)
The bill would expand and promote the Undiagnosed Diseases Network to speed diagnoses and advance genomic diagnostics for people with rare conditions, improving care and research but requiring federal investment and posing privacy and equity risks.
Patients with rare or undiagnosed conditions would gain expanded UDN capacity and access by 2027, increasing the number of evaluations and diagnoses they can receive.
Patients with rare or undiagnosed conditions would receive greater recognition and policy attention, helping speed diagnosis and care coordination.
Hospitals, clinicians, and states would benefit from promoted medical education and public awareness that can reduce diagnostic delays and inequities in access to genomic technologies.
Patients' genetic and medical data would face increased privacy and data‑security risks as genomic sequencing and AI tools are used more widely.
Underserved populations (e.g., rural and low‑income communities) could see persistent or widened disparities if they lack access to the genomic and AI technologies the bill emphasizes.
Expanding UDN capacity and genomic diagnostics could increase federal research spending needs, imposing additional costs on taxpayers.
Based on analysis of 1 section of legislative text.
Recognizes scope and harms of undiagnosed diseases, highlights NIH's Undiagnosed Diseases Network and supporting nonprofit, and urges awareness, education, and expanded equitable access to diagnostics.
Official title: Expressing support for the designation of Undiagnosed Awareness Month.
Introduced April 28, 2026 by Mark Pocan · Last progress April 28, 2026
Recognizes the large number of Americans living with rare and undiagnosed conditions, describes the National Institutes of Health's Undiagnosed Diseases Network (UDN) and supporting nonprofit activity, and highlights April as Undiagnosed Awareness Month and April 29 as Undiagnosed Day. It calls for greater public awareness and medical education to shorten diagnostic journeys and improve equitable access to genomic and other diagnostic technologies. The resolution notes the UDN's tools (genomic sequencing, model organism research, and emerging AI use), the Undiagnosed Diseases Network Foundation's role, and NIH intentions to increase UDN capacity and expand access by 2027.