Summary

Designates the first week of June as Hidradenitis Suppurativa Awareness Week and urges steps to improve care and outcomes for people with hidradenitis suppurativa (HS). It calls for greater public and clinician awareness, faster and expanded research and treatment development, better access to therapies, improved diagnosis, and policies to reduce disparities and improve quality of life for patients and caregivers.

Key Points

• Designates the first week of June as Hidradenitis Suppurativa Awareness Week to raise awareness among the public and health professionals.
• Highlights HS as a common, painful, chronic skin disease affecting about 3.3 million people in the U.S.
• Calls for improved clinician and public education to reduce late or missed diagnoses.
• Supports more biomedical research and faster development of effective treatments, including expanding access to biologic therapies.
• Urges policies to reduce disparities in care and to improve quality of life for patients and caregivers.
• Emphasizes non-legislative, awareness and policy priorities rather than authorizing new spending or programs.
• Notes severe psychosocial harms associated with HS, including increased risk of suicide, underscoring mental-health needs.
• Targets better diagnosis, treatment access, and support services as primary areas for action.

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