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Grants consumers clear rights over genomic data held by direct-to-consumer genomic testing companies: consumers can access their genomic data, delete accounts and data, and request destruction of biological samples. Companies must post clear notices about those rights and about sharing deidentified data for research, meet 30-day timelines for deletion/destruction requests subject to limited legal-retention exceptions, and the Federal Trade Commission enforces the rules and may issue implementing regulations within one year.
Read twice and referred to the Committee on Commerce, Science, and Transportation.
Introduced March 5, 2025 by Bill Cassidy · Last progress 1 year ago