Sponsors (12)
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Creates a federal grant program to expand diagnosis, awareness, training, and services for people with fetal alcohol spectrum disorder (FASD) and their families by establishing FASD Centers for Excellence, defining what it means to be “FASD‑informed,” setting grant rules and eligible entities, requiring a report to Congress within four years, and authorizing funding for fiscal years 2025–2029. It also repeals an earlier, narrower statutory provision and consolidates federal support under the updated program.
Amends Part O of Title III of the Public Health Service Act (42 U.S.C. 280f et seq.) and updates section headings and terminology to use the abbreviation “FASD.”
Replaces prior language about a “prevention and diagnosis program” with authority for “supporting and conducting research on FASD, as appropriate.”
Requires integrating a case definition for FASD into surveillance and, in collaboration with Federal and outside partners, supporting professional organizations to develop and refine evidence‑based clinical diagnostic guidelines and criteria for all FASD.
Requires building State and Tribal capacity for identification, treatment, and support of individuals with FASD and their families, which may include several specific activities listed below.
(A) Utilizing and adapting existing Federal, State, or Tribal programs to include FASD identification and FASD‑informed support.
Who is affected and how:
People with FASD and their families: Direct beneficiaries. The Centers will seek to improve timely diagnosis, access to coordinated care, family support services, and public information, which can reduce delays in care and improve outcomes.
Health care providers and the health workforce: Providers will gain access to specialized training, clinical tools, and best practices to identify and manage FASD more effectively; this may change clinical workflows and continuing education priorities.
Community and behavioral health organizations: Nonprofit and community health centers that serve children and families may be eligible for grants and technical assistance to expand local services, improve referrals, and implement FASD‑informed practices.
Federal agencies (HHS and components): HHS will administer grant competitions, set program guidance, monitor grantees, and prepare the required congressional report—creating administrative duties and budgetary planning for implementation.
Grantee organizations and academic centers: Entities that receive grants will need to build or expand programs, meet reporting requirements, and demonstrate use of funds for training, diagnosis, and support services.
Overall effect: The legislation centralizes and expands federal support for FASD through a defined grant program and national centers, likely improving service availability and consistency over time while requiring HHS to stand up program controls, manage grant competitions, and evaluate outcomes.
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Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Introduced January 16, 2025 by Lisa Murkowski · Last progress January 16, 2025
Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Introduced in Senate