Sponsors (38)
The bill funds a targeted National Academies study that could improve prevention and care for preterm birth and inform state and federal policy, at the cost of modest federal spending, tight deadlines that may strain agencies, scheduling shifts for some grants, and potential privacy risks that will need mitigation.
Pregnant people and infants: a congressionally mandated National Academies study will identify effective measures to reduce preterm births and improve maternal and neonatal health outcomes.
State governments, public-health programs, and policymakers: the study will assess state best practices and deliver a consensus report to HHS and Congress within 24 months, enabling replication of effective programs and better-targeted federal and state policies.
Parents and families (including low-income households): the study will quantify direct and long-term costs of prematurity (e.g., NICU stays, post-discharge care), producing evidence that can inform policies to reduce out-of-pocket burdens.
Parents and taxpayers: including raw or insufficiently de-identified data in the report could expose sensitive health information about families and infants, raising confidentiality and privacy risks.
HHS, federal agencies, and contractors: the 30‑day convening requirement and 24‑month reporting deadline could strain agency capacity, potentially rushing planning, limiting study scope, or reducing study quality.
State governments and health systems: extending grant reference years to 2025–2029 may shift timing of authorized activities, delaying or requiring reprogramming of existing initiatives tied to prior funding windows.
Based on analysis of 2 sections of legislative text.
Extends PREEMIE grant authorization through FY2029 and requires a National Academies study on preterm birth with a consensus report and raw data due in 24 months.
Introduced February 11, 2025 by Robin L. Kelly · Last progress February 11, 2025
Extends existing federal authorization for PREEMIE grant activities through fiscal years 2025–2029 and requires the Department of Health and Human Services to contract with the National Academies to form an expert committee to study preterm births. The committee must be convened within 30 days of enactment and deliver a consensus report and underlying data within 24 months covering costs, risk factors, detection opportunities, targeted research strategies, State best practices, and precision medicine approaches. The change includes a minor technical correction to prior statutory text and replaces a prior quoted establishment clause with the updated act name. The study is to be delivered to HHS and specified Congressional committees and is intended to guide research, public health practice, and program priorities on premature birth prevention and care.