Sponsors (28)
The bill directs meaningful federal funding, research, clinical guidance, and public education to improve detection, treatment, and equity for people with endometriosis, at the cost of added federal spending, new data-collection burdens, and privacy risks that will need careful management.
People with endometriosis (primarily women) will receive sustained federal research and surveillance funding (~$50M/year FY2026–2030) to improve understanding, treatments, and long-term outcomes.
Clinicians will get evidence-based guidance on detection, diagnosis, and care, which should enable earlier diagnosis and higher-quality treatment for people with endometriosis.
People with endometriosis — including underserved racial and ethnic groups — will see increased public education, mental-health resources, and culturally appropriate outreach (including $2M/year for education), which can reduce stigma and improve access to support.
Collecting and sharing sensitive health and demographic data for surveillance and studies raises privacy and confidentiality risks for patients, particularly marginalized groups.
Authorized funding (about $52.5M/year plus a small one-time amount) increases federal discretionary spending and may require offsets or add budgetary pressure for taxpayers.
Insurers, group plans, and state Medicaid programs face new reporting and compliance costs to provide required data, imposing administrative burdens and potential cost increases.
Based on analysis of 3 sections of legislative text.
Funds and directs NIH/HHS research, data collection, education, clinician guidance, and a National Academies disparities study on endometriosis with authorizations for FY2026–2030.
Creates a coordinated federal initiative to study, track, and raise awareness of endometriosis. It directs NIH and HHS to fund and carry out research and data collection, analyze access barriers to treatment, run public education campaigns, provide clinician guidance, and contract the National Academies to study disparities. Authorizes funding for these activities for FY2026–2030: $50 million per year for NIH research and surveillance, plus smaller annual authorizations for education and clinician outreach, and a one-time sum for the National Academies study. Requires a report to Congress on access barriers within two years and delivery of the disparities study within 24 months of enactment.
Official title: To advance research, promote awareness, and provide patient support with respect to endometriosis, and for other purposes.
Introduced December 11, 2025 by Nikema Williams · Last progress December 11, 2025