Sponsors (25)
The bill directs modest, targeted federal resources and studies to improve recognition, research, clinical guidance, and outreach for endometriosis—potentially improving diagnosis and equity over time—while creating privacy, reporting, and budget trade-offs and offering limited immediate changes in services.
Women and other people with endometriosis will receive dedicated research and surveillance funding ($50M/year FY2026–2030 plus one-time amounts) to improve understanding and treatments.
Clinicians will get evidence-based guidance on detection, diagnosis, and care, improving earlier diagnosis and treatment quality for people with endometriosis.
Medicaid/CHIP beneficiaries, insured patients, and policymakers will benefit from a formal analysis of insurance and Medicaid/CHIP barriers, which can identify coverage gaps and inform later policy fixes to improve access and cost-sharing.
Collecting and sharing sensitive health and demographic data for surveillance and studies creates privacy risks that could lead to breaches or reduced patient confidentiality, particularly for marginalized groups.
New reporting and data requirements may impose compliance costs on insurers and state Medicaid programs and create administrative work for providers and state agencies, potentially diverting resources from care delivery.
Formal findings and a short-title law without guaranteed new service changes or entitlements may produce limited immediate clinical or financial benefit and create frustration or unmet expectations among patients.
Based on analysis of 3 sections of legislative text.
Establishes a federal endometriosis initiative funding research, data collection, public education, clinician guidance, and a National Academies disparities study with authorized funding for FY2026–2030.
Introduced December 11, 2025 by Nikema Williams · Last progress December 11, 2025
Creates a federal endometriosis initiative that funds expanded NIH research and surveillance, directs HHS to analyze barriers to care and run public education, requires clinician guidance and communication materials, and commissions a National Academies study of disparities. The bill authorizes specific funding levels for FY2026–2030, sets timelines for data collection and reports to Congress, and includes privacy protections for health data.