Sponsors (28)
Official title: To advance research, promote awareness, and provide patient support with respect to endometriosis, and for other purposes.
The bill raises the profile of endometriosis and provides targeted federal funding, research, guidance, and education to improve diagnosis and equity, while creating new data-collection and reporting obligations, privacy risks, and modest federal spending that may require management and oversight.
People with endometriosis (mostly women) will get sustained federal research and surveillance funding ($50M/year FY2026–2030 plus related support) to improve treatments, diagnosis, and understanding of the disease.
Clinicians will receive evidence-based guidance on detection, diagnosis, and care, increasing earlier diagnosis and improving treatment quality for patients with endometriosis.
Congressional findings and the bill's visibility reduce stigma and elevate endometriosis in public and policy discussions, supporting advocacy, education, and better recognition of the condition.
Collecting and sharing sensitive health and demographic data raises significant privacy and confidentiality risks for patients, including potential breaches of medical information.
New reporting requirements for insurers, group plans, and state Medicaid programs will create compliance costs and administrative burdens for payers and potentially higher overhead passed to beneficiaries or taxpayers.
Mandated data collection and reporting could impose administrative work on providers and state agencies, diverting staff time and resources from direct patient care and causing delays.
Based on analysis of 3 sections of legislative text.
Creates a federal endometriosis initiative funding NIH research, data collection, provider guidance, public education, and a National Academies disparities study with authorizations for FY2026–2030.
Introduced December 11, 2025 by Nikema Williams · Last progress December 11, 2025
Establishes a coordinated federal initiative to improve data, research, clinician guidance, public education, and disparities study for endometriosis. The bill directs NIH and HHS to collect and analyze data, fund research and outreach, produce evidence-based clinical information, and contract with the National Academies to study disparities, with specific annual funding authorizations for FY2026–2030. Key activities include $50 million per year for NIH research and surveillance, HHS analysis of treatment access barriers using insurer and Medicaid/CHIP data, public education and clinician information programs, and a National Academies study on endometriosis disparities. The measure requires reports to Congress and authorizes modest program funding through 2030.